The Angry Zebra is my alter-ego of sorts... it stems from the fact that rare disease sufferers are considered 'medical zebras'. If I've got to be one of the world's rarest disease sufferers in history I might as well have some fun with it!

I was born with six of the world's rarest genetic mutations. Unfortunately they are all completely devastating. Just one is enough but to be hit with six is so unfathomably rare that I am literally mythical!

I have done many, many feats in my life that would be impossible for mere humans. This is why I am absolutely happy to sit back knowing that I have achieved so much in the short time span I had to do it in. I would detail them but it would expose my identity so much more rapidly.

One thing I am willing to share? I studied for 12 years in law enforcement. This and my families heavy medical background is the sole reason why I was able to investigate and diagnose such excruciatingly rare diseases where 100+ doctors have failed. It wasn't easy! It involved many, many nights of self-doubt and carefully re-checking my work and investigating numerous diseases to get to the point I have.

Even to this day I re-check and re-investigate my work. I didn't want to be born this incredibly rare. But if this is a battle I have to face I'll wear my stripes with pride!